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This time next week...

  • pmjmccleave
  • Jan 13, 2019
  • 3 min read
  1. My best birthday party ever (or at least on a par with my 6th birthday when I got the mega sized Milenuium Falcon and an X-Wing Fighter. Mum threw them away when I went to university. There goes my retirement fund.)

  2. A(nother) change in Chemotherapy

  3. Recovery from a broken back

  4. Over 6 weeks in hospital

  5. Newcastle finished 10th in the Premier league

  6. Had an autologous stem cell transplant

  7. Found another broken vertebrae that cannot be fixed

  8. Had my face plastered across the UK transport network

  9. Got on Sky news

  10. Like a newborn, had all my jabs again

  11. Took 4 weeks to get over a simple cold

  12. Started the 10'000 Donors campaign And I thought that training for a triathlon took dedication! But to me, it feels like that was all done by someone else. Anyway, 2018 is done and can now be filed away under the "what lessons can I learn from that?" category. It  lays the foundation for more of the good stuff in 2019, especially with the campaign; so I return to the question that always centres my thinking: What is in my control? Thing is, the elephant in the room that is quite clearly out of my control i.e. that nuisance of an incurable, unpredictable cancer, now has a response to my question and makes me think twice about looking beyond next week. Here are some examples so you get where I am coming from: Me. Shall we plan a holiday with the family abroad for the first time in ages? Myeloma. You wont get insured for that without remortgaging your kids. You might relapse then you'll not be able to go and lose the money you fronted. Me. I'd really like to enter some triathlons this year Myeloma. In your dreams sunshine. You'll probably break your back again just getting into a wetsuit. Me. I want to get back into a more normal day to day routine and reignite my career. Myeloma. Good luck with that. Who is going to accommodate your illness and give you the chances you had before? Now don't get me wrong, much of that emanates from the glass-half-empty mentality that occasionally creeps into my thinking, but they are considerations that need fronting up to. Like an extra barrier that need traversing whenever I think of planning something. Which you will all know irritates the hell out of me! I hate shackles of any kind, especially those that curtail me in doing what I want to do. And to complicate the decision making process further, there is another voice to add to the mix. (I call this voice Tristan because it very much reflects the approach to life regularly vocalised by one of my best mates) This one says "why the hell are you not out there doing everything you want to do because your clock is ticking mate?!" Me. I'd really like to do X,Y and Z but we really should save the money Tristan.  Pete, the mortgage will get paid off anyway when you depart so why the hell don't you just get on with enjoying it?! Me. But if I spend it now I know I wont have enough for next month Tristan. It'll be fine! You can't take it with you so treat yourself. for the record, the real Tristan has never suggested I not pay my mortgage. These are hypothetical  examples whereby I apply his more relaxed approach to decision making! Talk about conflict. Both are right and wrong in equal measure. So my approach? Accept the risks and find a way. Cancer should not be used as an excuse not to live. I accept it won't be plain sailing and that there will be curve balls thrown at some point, but that is the same for anyone. Hell, if you aim for nothing that's precisely what you'll get. At least if I try and don't make it for whatever reason, I'll have got further than not trying at all. And when I am 70 years old, penniless and without a home because me, Tristan and the rest of my mates frittered it all away skiing, buying Ferraris on credit and making twice-yearly trips to the casinos of Las Vegas, Macau and Dubai; at least I'll sit cold, hungry and achy, but content, in the knowledge that in the preceding years, I bloody enjoyed myself!

______________________________ Despite the above, I have still not decided what to go for in 2019, but I know I won't be held back by indecision or lame excuses. And in truth, the only real goal is to be sat on my sofa next to my lads typing another monologue this time next year, and the year after, and the year after...

6 Comments


jasper
jasper
May 28

Really feel you on the missing Millennium Falcon—that’s a tough one to lose. I actually came across a fun collection of similar lost toy stories on Bizarre Lineage Wiki that made me feel a bit better about my own childhood regrets. Hope the vertebrae issue stays manageable, and congrats on Newcastle’s finish.

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jasper
jasper
May 28

This sounds like such a mix of highs and lows—the Millennium Falcon and X-Wing story is a painful one, I think we all have that "what was I thinking" regret. Sorry to hear about the vertebrae, that's rough. I came across a really helpful breakdown of how to manage chronic back issues at ScopeQuill that might offer some perspective. Newcastle's 10th place finish is at least something solid to hold onto.

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jasper
jasper
May 27

That sounds like a pretty solid birthday combo—a Newcastle top-half finish and a Millennium Falcon would be tough to beat (sorry about the retirement fund though). I was reading about how even small spinal issues can throw everything off, so I’ve been looking into ways to track recovery more carefully with ScopeQuill. Hope the vertebrae issue stays manageable for you.

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jasper
jasper
May 27

That bit about the Millennium Falcon and X-Wing being thrown away really hit me—such a painful reminder of lost treasures. Hope the vertebrae issue isn't causing you too much trouble, and congrats on Newcastle's solid finish. If you ever need a quick subtitle fix for your vlogs about this stuff, I've found SubtitleOps pretty handy.

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xin wang
xin wang
Mar 02

I just finished reading "This time next week...", and the practical angle stood out right away. This fits well with Measure frame rate and rendering smoothness directly in browser.. Definitely bookmarking this one. online fps test

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